Is there anyone else out there with Neurofibromatosis?

Cornelius Thornborrow: I have NF1, and have a number of neurofibromas at various places of my body. I have had several cut out over the years but as you know, new ones will form from time to time. Since the condition is genetic, I do not think there is an alternative medicine that can help... but I have researched high and low. I share your stress over wishing there was a way to make the bumps go away. Depending on if the bump is more on top of the skin or below, some have found success with laser treatment.. but regardless of how the tumor is removed there is usually a scar. For me, every few years will have the doctor remove the largest or most visible ones. I pray that you can still find peace in that you are of great value and worth as a person despite the imperfections. I wish you the very best....Show more